Archive for the ‘mediblog - oh poor little gland’ Category

mediblog – 3 months post treatment

Wednesday, June 30th, 2010

It’s been an interesting time the last 3 months -  First the euphoria of getting to be done. High energy and a manic back to usual phase – trips to the US and more…

Then it faded a bit – well actually quite a lot. As I started to think that actually I didn’t know if I was “fixed” yet. So I organised a PSA test in April and – Whoopee 0.31 (normal 0-4)

Brilliant…

But then the Mind said:

Ah yes but is it just low because there is no testosterone in your system yet?

The consultant confirmed that this was probably the case when we met in May for a follow-up (She also confirmed that my tumour had been more advanced than I realised…)

It can take 9-12 months for the Zoladex hormone treatment to clear out and get back to normal

And sure enough the side effects of tiredness, low (= zero) libido and the occasional hot flush persisted…So she suggested, and I had, a testosterone test and… Bingo a level of 0.3 (when normal is 1.9 – 4. 5) – Hmmm did I really need to know…

So I started pondering how to get my hormone system back into balance…  Whilst getting on with my life – under a bit of a lingering health cloud…

Today I saw my GP and got another PSA result – 2 months further on and sitting at 0.30 – even lower. He was delighted – but was also taken in by my “suppression theory”…. Hmmm again

Then he said a couple of things – (1) the testosterone could well be low because of the radiation treatment “down there” and (2) actually this is all GOOD news – and not actually “bad” news – as you are recovering from Cancer. This was good to be reminded!

So it will all take time to get to know that Im really fixed and my impatience will just have to wait to be resolved….meanwhile I need to work a bit on my Mindfulness…

Ill keep posting…..:)…

mediblog – day 21/23

Monday, March 22nd, 2010

 

Just two days more of treatments to go  …the champagne already on ice!

Mild euphoria raising the last days – the side effects have almost disappeared but more interestingly, and importantly, my body energy has returned with a vengeance. This intertwining of physical and psychological is truly fascinating – maybe my body – anybody –just gets used to a daily dose of x-rays and adapts to suit?. Who really knows – and anyway does it matter? – I feel great and that’s what counts!

The psychological burden of wondering what was next, not feeling to plan anything too much and being unenthusiastic for the daily chores of life has lifted.I realise it’s been around for some time – some months. A lingering neediness and elements of “poor me” interspersing my daily life.

Fair enough- you might say – you are diagnosed with cancer. And it’s true – but it’s also just mindset baggage too. Especially in my case, when the only physical symptoms have been as a result of the treatment and prescribed medications!

Anyway a clarity of purpose emerges from all this – and it feels good. Really good! So continue to watch this space a little longer …

I heard at the hospital today that I will get to meet my consultant 6 weeks after the last treatment when he will review what my PSA reading is at. The “0-4″ optimal window will, I guess, remain with me forever this lifetime. It’s still the primary measure that all is in order on the prostate front. Anyway that’s OK too …

So look for a couple more blogs at least – one of which will be a summary of the learning’s and lessons from  this last 18 months – the REAL reason for the journey….

mediblog – day 14/23

Thursday, March 11th, 2010

Apologies to any readers sitting there with baited breath awaiting my updates…
The inspiration comes and goes – along with many other things in life
And now it’s come again

After the Brachytherapy I hit 10 days of mild euphoria – wow that’s over and wasn’t so bad at all and maybe this fix is easier than I thought – sorta thing. Life was running pretty much as normal and the zero testosterone symptoms were fading… all good….
I had a 10 day US trip 2 weeks later (wedding – another story…), went down with a virus which marred my participation somewhat, but I recovered to enjoy a few days of relax – US style.
Then I was straight back to the UK to commence my 23 days of daily irradiation with X-rays…yummie (more…)

mediblog – special edition – the procedure

Wednesday, January 20th, 2010

18/01/2010 15:50

Finally the day for Brachytherapy draws near…

Been here 3hrs at the hospital
Sitting silently – reading
The ward I was to go onto is closed in isolation
Virus attack!
So I have been seated in a waiting room
For “a bed to become free”…
Somewhere else…

Watching the bustling around
Of nurses and staff – a continual hum of chattering noise
The occasional other visitor in here
Leaving after short stays…

This waiting room could double as a ward
Has all the wall fittings – light, oxygen, vacuum, emergency button and radio
6 stations – but chairs and tables rather than beds
A wheelchair with a rolled mattress
Furniture randomly assembled
Messy…but clean

Can’t get wifi here –intermittent signal
Phone works – so Im not completely cut off

4th day of my liquid/fruit only diet…
Hunger pangs have subsided since yesterday
Evian and blueberry juice for refreshment
Feels a good idea to cleanse myself out
As a supplement to this hospital procedure

Now I could start to get bored….:(…

18/01/2010 18:55

Finally they found me a bed!
Mere ward – just along the corridor

This is an 800 bed hospital – and with endless coming and going
The “bed allocation managers’ “job must be a nightmare

Friendly nurse got me some soup
Energy drinks to come later
As no solid food for another day or two.. :(
>And an enema to look forwards to later this evening<

A young Muslim junior doctor took my blood

And checked my records
Yes it really IS me…
The paperwork here is endless

This place is BUSY to the max
Non-stop bustling nurses and auxiliaries
Beeping monitors
Making of beds
Clinking of equipment
And various “noises” from other beds
Here in my 6-bed ward
(Seems Im the “youngster” …gulp)

18/01/2010 20:52
Enemas happen
Not so bad – less unpleasant than colonic irrigation
Not sure I would want to be a nurse though….

So Im pyjamarised now
Feeling like a “local”
Curtains drawn round my bed
Homely…
Enjoying my reading
(Autobiography of a Yogi)
The hospital has an unavoidable routine
I’ll hit the sack soon
Next enema at 6am
I gotta be really cleaned out for tomorrow
The BIG day

20/01/2010 10:54
Woah!
Yesterday was definitely NOT a blog update day
I was full on from 6.30a till 6.30p

I was woken for the enema and nil by mouth
My 5 days fast meant there was not much to “enemate”
Then the docs came by at 8
The Anaesthetist – a hip, cool guy dry humour
Then the surgeon – he who inserteth the rods
Then away we go at 9

I walk over to anaesthetics
Get cross examined as to who I am – again
(Forgotten to tag me… armbands are us – one on each for good measure)
Then up on the table
Catheter inserted into my lower spine
For the spinal tap (& I thought they were a rock band…)
Then a jab of “Gin&Tonic” – to chill me out
After 5 minutes I was Veeery chilled…
And numb from the waist down
An interesting experience..
As my mind told me I could feel it all
But the mind couldn’t move anything…!

Then lifted onto a wheelie bed and into Theatre
Full of people – 10 or more– bustling around
There I was wired up, fluid drip, ECG tags
And suddenly I saw my feet moving – man-handled into a frame – as if by magic
No sensation whatsoever
This took 20 minutes whilst 15 rods (plastic tubes) were inserted into the Prostate
Under ultrasound imaging – the probe well up my rear – but nothing felt (=good!)
Also a catheter into my bladder for drainage purposes (more on this later…)

Then to Recovery for 20 minutes – and the first of maybe 50 vital sign checks
Blood pressure (every 10 minutes from then on, pulse and oxygen
Apparently LBP can be a problem with spinal freezing…
(And what do they do with all this data?!)

Next the porters came and wheeled me to the other end of the hospital
Oncology radiotherapy department…

Into a big room for the procedure
A fun team of 6 ladies – jovial and friendly
Keeping me entertained for over an hour whilst the treatment was”planned”

This involved relating a photo of the positioning of each rod to the irradiation dose to be applied
Into each tod is inserted a radioactive pellet on a wire
This is moved from position to position (up to 20 positions per rod)
So 300 spots irradiated in total – each for just a few seconds
And managed by a computer controlled machine
Hi-tech to the max! (– and bear in mind the Prostate is just 5cm in diameter)

So the planning takes time and involved the doctors poring over a computer monitor
After all this the rods were connected to the machine and everyone left the room
Whilst I went radioactive – it took just “12 and half “minutes
Then I was unhooked and wheeled back to the ward to “rest”
For 45 minutes…(It was 1pm…)

Then the whole thing was repeated
Back to anaesthetics for a top up of the spinal tap
Then recovery for 30 minutes
Then the Brachytherapy room again
The planning had to be repeated from scratch
“In case something has moved”
This finished by 4.30 but then I had to wait an hour as there needed to be
5h between radioactive treatments – gulp – for the cells to “recover”

Luckily a full iPod and some good conversation with the staff kept me occupied…
(Im flat on my back and frozen throughout…enjoying the intricacies of hospital ceilings))
They were very concerned for my boredom – but actually it was fascinating to just be frozen and staring at a ceiling…until the headache arrived…
Quite severe – probably mainly due to chemicals in me and nil by mouth
So a wet towel was applied to my forehead – it helped

Finally the procedure Nr 2 happened – just 10.5 minutes this time
All the tubes and the frame to “hold it in place” assembly was removed
Quite a sight!
Farewell thanks applied…to the ladies
(What they saw and I didn’t – gulp)
I was wheeled back to the ward to recover…6.30p – phew
Totally exhausting doing nothing…

The evening was fine
Just some developing discomfort with the catheter
I t was draining OK but I felt like I couldn’t pee…
Not nice and painful
The nurse tried a few tricks which helped and finally I fell asleep for a few hours as the pain subsided
She wasn’t allowed to remove the device till the morning after doctor’s check ….

EXTRA BIT
Bladder catheter

This is a bifurcated tube pushed up the urethra into the bladder – maybe 20cm or so long
One side of the tube has a balloon on the end
Once inserted – this is filled with saline solution via a syringe
The balloon inflates and keeps the tube “locked” in the bladder – cleaver stuff!
The other side is the drainage side – attached to a bag I had to carry with me.
Something in all this caused the “can’t pee” irritation

After a fitful night I was awake at 5am and hoping the docs would come early
To announce me discharged and that the catheter could be removed
Which they did – subject to the check that I could pee unaided

Finally the nurse came by
Do you want to remove the catheter yourself?
Why not?!(I screamed inside…)
Actually pulling it out (after she had deflated the balloon!)
Was not as bad as I had expected – and the “relief “was worth it anyway
And – yippee – I could pee unaided
No blood, no diarrhoea, no soreness…..a specimen treatment it seems…
So all is good and Im outa here…

A 48-hours that felt like 10 days…

mediblog

Saturday, January 9th, 2010

Lemongrass suppositories
Have just arrived
Lemongrass – a recommended “essential oil”
For the poor little gland
And “you know where” is in very close proximity…
So I’ll give them a try… :) … (Probably)

Otherwise the build up continues
My biological intake regime is full on
Healthy regime to the max
And I’ve lost nearly 3kg
From my “post Zoladex” peak

But the lack of energy remains… :(
I do NOT like this Z-stuff in me

I cancelled the Hawaii trip planned for December
…Too far to travel for a couple of weeks…
Better to focus resources – mental and financial – on the health issue here
I still may be going to the Paracelsus Clinic – I am waiting to hear back what treatment regimen the recommend…
But they are s l o w to respond (The sent me details of blood tests done on my visit (and a big bill!) but with no explanation of what they mean – not a good start!)

Mentally Im still struggling to find the right balance between my work and time for myself…it’s a real challenge to unwind from a workaholic lifestyle but I realise it’s essential, and so persevere…

In a week I will travel to England and prepare for the 19th.
So ill keep the blog more up-to-date as the “action” commences…

mediblog

Wednesday, November 4th, 2009

The last weeks have been a rollercoaster ride of information gathering and a high degree of consequential confusion…. Early September – my last blog – I had yet another trip to the RD&E for a pre-op discussion with the surgeon and specialist radiologist before I left for a 4 week US trip. During the trip I read a great book about biological/nutritional cures for Cancer (1) , had some useful contacts with other “sufferers” and immediately on return yet another hospital trip for tests, a visit to my GP for blood tests and the next “3 month” Zoladex implant. Then a half day with my Nutritionalist. Back in Germany, I finally got an appointment at the prostate cancer clinic in Freiburg for a “second opinion” on the intended Brachytherapy then only yesterday drove 4h to the Italian part of Switzerland to visit the Paracelsus Clinic specialising in biological cures for Cancer. The main impact of all this is mostly confusion concerning all the options and conflicting opinions along with some conclusions I have reached. Professor Schulz-Seeman – my second opinion here in Germany – sorta summed it up when he said “Whatever route you take its experimental”…. (more…)

Mediblog

Monday, September 7th, 2009

January 19th 2010 – Is to be the auspicious date for my “procedure – now confirmed finally….

 

Otherwise today was a bit of a non-event. I met three people all telling me the same things I heard last visit – they clearly want me to fully understand the process and the risks – which is good I suppose but it does feel a bit like overkill. Anyways I got some new additional information:

·         The procedure will be under local anaesthetic – which I like

·         It will take all day (8.30am -7pm) – that’s loooong day

·         The side effect outcomes – loss of “bladder control” and such-like are, statistically, unlikely to be permanent if they occur at all…let’s hope not

·         It will be unpleasant and sore – but not a major drama

·         Its gonna be remission rather than cure – apparently prostate cancer can spread all over and the ongoing test is to monitor PSA – so this one is open ended.

 

Ah well I guess “cure” was a bit much to expect really… (more…)

Mediblog

Sunday, September 6th, 2009

Consultant tomorrow…slightly apprehensive - aways here’s my little handful – virtual version….

09-corfu-etc-010

Mediblog

Sunday, August 23rd, 2009

corfuAfter this last consultant appointment I felt quite low for a week or so.

The “thoughts” of this invasive procedure – albeit hi-tech and minor – do NOT inspire me. I really don’t want my body worked on …unless it’s really necessary…:(…

On top of which I have been inundated with alternative therapies I could/should try from well-wishing friends – so Im holding a hope that actually my nutritional and dietary approach may actually alleviate the procedure by the time its due.

I guess a further MRI will indicate the state of the little fella (prostate to you…) before the Brachy is embarked upon…

 

< I have actually made my own  personal prostate lookalike – a yellow balloon filled with water to 49 ml – the volume that the ultrasound indicated – which I keep in view to meditate/cogitate upon to help me stay in touch with this part of MY body – and not some abstract concept of an organ that isn’t really  me…> (more…)

Mediblog

Friday, July 17th, 2009

 

Well more mind-numbing time with the consultant Oncologist today.

A new to me and very nice Sri Lankan Guy with a perfect bedside manner – on in this case “table side”…He answered almost all my questions before I asked them (& I had a long list…)- Took 45 minutes of National Health time – I felt well treated.

Basically he needed to explain the next stage of treatment and get my approval. It’s as predicted – HD Brachytherapy , then Radiotherapy ( see below for fuller technical description if you’re interested…). The other options that I have read about – cryotherepy, ultrasound etc is not appropriate for an advanced tumour – as in my case so he told me. Also taking the gland out prostatectomy cannot be performed with success in an advanced stage situation…

So the way forward is clear – I signed the forms…

 

The “downside” is that it’s all more complex than I understood – the procedure is a “3 day jobbie” in hospital with general anaesthetic ( ugh) and a surgical procedure ( that I’d hoped it would be over in a day…)   then a 2 week break, then daily radiotherapy for 4/5 weeks, so overall a couple of months…somewhere.

He said there’s a “90% likelihood”  that this procedure will be successful ( so the statistics say) but the methodology for assessing this is a bit vague – basically the PSA test is the only indicator other than a further biopsy – so basically its “monitoring for life”. If the PSA jumps again then they start looking for why….

 

The part that’s vaguer still are the likely side effects of the procedure and irradiation – some bowel or urinary system damage will occur, most temporary ( 8 weeks ) but some may be permanent..:(

Its 50:50 that I’ll be impotent – that’s erectile dysfunction in the jargon – as blood vessels get damaged. So cure will not be without its costs…. (more…)